That's been tough to blend in with a life of autism advocacy. I see Pharma at work, I see a corrupt medical system at work, I see woefully inadequate service agencies at work. I see insurance coverage that doesn't work for us. I see few opportunities for recreation, respite, and meaningful work for our kids - at work. I see an uncertain future for our adults with autism at work. In fact, for there to be appropriate places for them to live and be cared for once I'm dead -- at work -- someone should have been at work on that over a decade ago.
So you see my dilemma.
But like Brandon, I just keep staring. Searching.
Probably nothing with that attitude...
I'm sure I single-handedly keep God laughing and shaking his head at my wretchedness.
But in all honesty, I'm wretchedly tired of it all. The hurry up and wait for nothing medical system that is "Life with Autism." Hurry up and get there early so you can sit there and wait for no help... As I was trying to give myself an attitude adjustment, I looked down and saw Brandon with the sweetest expression. He's the one who has it hard, yet I was the one complaining. He was sitting there, still, something that is not in him to do, and I was the one pacing like a caged animal.
She was relatively free to see where God was at work around her and join him there. The food pantry, church volunteer project, whatever. But even in that, God still had something for me to experience, even if it had nothing to do with joining in a work. On the ride home in rush-hour traffic, I had more opportunities to witness, and safely capture, Brandon's sweetness.
His excitement at finally getting to go home...
We were both very ready to experience that!
All too few.